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basildon and essex area diabetics

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Methods of Diabetes Control [May. 29th, 2007|02:53 pm]
basildon and essex area diabetics

hermi_nomi
I have been diabetic for 16 years and have alwasy used syringes to inject insulin. Over the past ten years or so I have had more and more health care professionals try to entice me into using pens. I am totally against the bloody things, but I am now finding it more and more difficult to get sringes on prescription. I have also noticed over the past five years or so that the things are made more and more shoddily.

I refuse to believe that I'm the only diabetic in my local area who uses syringes. So I have created this poll to see what other people ahve to say about this.

Poll #993282 Methods of Diabetes Control

How do you control your blood sugar levels?

Insulin injections
2(100.0%)
Tablets
0(0.0%)
Tablets and exercise
0(0.0%)
Other
0(0.0%)

If you inject, which method do you use?

Pen
1(50.0%)
Syringe
1(50.0%)
Pump
0(0.0%)
Other
0(0.0%)

Are you happy with the method you use?

Yes
1(50.0%)
No (and I shall say why in a comment)
1(50.0%)
Not bothered
0(0.0%)
Other
0(0.0%)

Are you happy with the make and design of the method you use?

Yes
1(50.0%)
No
1(50.0%)
Not bothered
0(0.0%)
Other
0(0.0%)

Are you local to Basildon?

Yes
1(50.0%)
No
1(50.0%)
Not telling you
0(0.0%)
Other
0(0.0%)

Finally, do you live in Essex?

Yes
1(50.0%)
No
1(50.0%)
Not telling you
0(0.0%)
Other
0(0.0%)
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Stem cell research: 'cure' for diabetes [Apr. 12th, 2007|02:11 pm]
basildon and essex area diabetics

hermi_nomi
[Tags|, ]

I heard on the radio last night that there has been some success in developing a 'cure' for type 1 diabetes (insulin dependant ~ like me.) Being dependant on insulin means injecting oneself with insulin up to four times a day.

I've been diabetic for over fifteen years now ~ I've grown-up diabetic. I've grown used to it. But I've never accepted it. I guess it just seems wierd to me that I have no choice but inject given that I want to stay well and healthy. There is nothing 'wrong' with me in a way 'cos I'm not physically disabled and I don't really have a detrimental condition ~ I just have to do these blasted injections, day in, day out ~ every blasted day.

And now there is a greater chance of been able to 'block' diabetes. (I feel like I'm a member of the X-Men here...) The simple explanation of type 1 diabetes is that it's caused when the pancreas stops creating insulin.

This BBC article says that Type 1 diabetes is caused by the patient's own immune system destroying insulin-producing cells in the pancreas.

The 'cure' consists of scientists taking the diabtics own stem cells and using them as a transfusion to restart the immune system. Apparently 14 of the 15 test patients were able to go for years sometimes, without an insulin injection. No surgery to replace the pancreas! A transfusion. That's probably like having a drip, right? I could cope with that ... And so what if stem cell transfusions don't create a permanent cure ~ even a few months without a single injection would be bliss. Buit would it be enough? If these transfusions became readily available and I have it done, could I bear to have to start injecting again? I don't think I could. And so, would I take the 'cure'?

It's also believed that stem cell transfusions could be used to help people with other auto-immune diseases. So I was wandering ~ what would your attitude be to this conundrum of whether to take the cure or not. Blue Pill, Red Pill (try saying that really fast while drunk ;-) .) What's you opinon on this preliminary research? Etc Etc

Here is another article that I seen posted at diabetes (thanks for the link.) I haven't read it yet but it's a new scientist article so should be informative.

PS also posted at my own journal.
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Diabetes, Retinopathy and the DVLA [Feb. 20th, 2007|03:11 pm]
basildon and essex area diabetics

hermi_nomi
[Tags|, , ]
[music |'Little Star,' Kelis]

How many of you guys are diabetic, or know someone who is diabetic and has a license to drive? (007 anybody?) Could you survive without your car? Have you faced problems with the DVLA as a diabetic, or with driving in general?

Having always had poor control of my diabetes, I've never bothered to learn to drive. Who wants to drive anyway when they can face a rise of 60p in bus fares, and buses that turn up when they feel like it...

There's an article in this weekends Yellow Advertiser (local free newspaper) about a diabetic womans sucessful campaign against a flawed DVLA sight test. Thearticle was first published in the Echo a week ago. The article says;

The old test was problematic for people with diabetic retinopathy - a condition where sight has deteriorated because of damage to the retina caused by diabetes.

This leaves tiny gaps in the field of vision, which the eye quickly adapts to by scanning.

But the old test required people to stare at a single spot, making it much more likely those with retinopathy will fail.

Mrs Banks's campaign eventually resulted in the DVLA getting together with the Government and eyecare experts to produce a report into diabetic retinopathy and fitness to drive.

The report has now been published, and includes all her key recommendations, including the need for secondary tests conducted by people in a driving environment.


See Consultation responces for Diabetes UK report on diabetic retinopathy and fitness to drive.

Would you say that the DVLA test discrimated against suffarers of diabetics retinopathy (I should hope we would as diabetics,) or would you say that if someone with retinopathy cannot stare at a single spot, thus failing the DVLA eye test, then they obviously have poor eyesight?

On the otherhand ...it's not like you would ever need to drive along the M1 or something and stare at a spot on the road ~ you'd probably end up crashing as a result!

*****
Edit Diabetes UK: Get involved ~ diabetes and eyes
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Queries about Living with Diabetes Day, February 9th [Feb. 17th, 2007|02:41 pm]
basildon and essex area diabetics

hermi_nomi
February 9th: Living with Diabetes Day

I did want to write about Living with Diabetes Day (February 9th as far as I have any knowledge of it,) but I've found it impossible to find out anything about it (so how could I post about the event?)

If you search the Diabetes UK site, it returns nine articles that don't seem relevant to the search criteria. And if you search on google, it comes up with these pages of links ~ Living with Diabetes Day and Diabetes Uk and February 9th

Seeing as February 9th has now been and gone, I've given it up as a bad egg. The general impression I got of Living with Diabetes Day is that it is a day where local diabetes voluntary groups put on events to raise awareness of diabetes.

What do you guys make of this event and the lack of available information... Was there more information in the Diabetes UK magazine, Balance? Do you know someone who was involved with an event for Diabetes Day?

Share your thoughts by clicking on 'Leave a comment'
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Diabetes UK Measure Up Campaign [Jan. 16th, 2007|02:10 pm]
basildon and essex area diabetics

hermi_nomi
[Tags|, ]
[music |Grace Kelly, Mika]

Diabetes UK Measure Up Campaign

Am I the only one who hadn't heard a single thing about this campaign? Apparently it was launched on the 12th of September 2006!

Measure Up was launched as an awareness campaign in the UK by Diabetes UK with an educational grant from sanofi-aventis. The campaign aimed to raise awareness of diabetes by highlighting the link between a person’s waist measurement and the risk of diabetes.

(The posters display a man and woman, who both hold a tape measure round their waists. The mans tape reads 37 inches and the woman's tape measure declares 31-32 inches [needless to say that I'm about 31 inches])

Apparently advertisements were displayed in bus shelters, train stations and in national newspapers! I didn't see any posters. Did you see any posters? What do you think of the posters? Did you see or participate in the Diabetes UK Roadshow? (The Roadshow was held at Bristol, Newport, Reading, Derby, Croydon, Glasgow, Liverpool and York from 1 September to 28 October.)

Also at the Diabetes UK website is the news that the Measure Up campaign increased awareness of the health risk of a large waist and has made people take action. Did you take action? The article further claims that an estimated 150,000 people in the UK went to see their GP because their waist size may put them at risk of diabetes

To read more about this campaign and to find out if you may be at risk of developing diabetes, please see Measure Up: Are you at risk

What are your opinions of this campaign? Please share them here and start a debate :-)

PS And if anyone visits the Diabetes UK website more often than me, feel free to post relevant news at this site. We can make a feature out of it :-)
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Local group meeting of Diabetes UK: 7th December [Nov. 26th, 2006|02:14 pm]
basildon and essex area diabetics

hermi_nomi
Basildon and District Voluntary Group Meeting of Diabetes UK

I'd just like to let everyone know about the next meeting of the Basildon group on the 7th December!We are an accessable and easy-going group. The meetings are really informal; they are not boot camps. No-one will tell you what to do as part of your diabetes care, although people will share posssible solutions if there adise is requested. Group members are not usually health care professionals but most are diabetic and as such relate to others who are diabetic and encourage them to live successfully with the condition. There are 100s of diabetics in the Basildon area alone, but few ever attend the group meetings. How well are each of these people coping with the news that they are diabetics? How are they coping at school/work, how helpful do they find their diabetes education, treatment, etc? We need feedback from the people we aim to reach out to. Come along to the meetings and share your experiences with us so that we can respond to the needs of local diabetics and advocate improvements in health care provision ~ together we can work towards better understanding and supportive care for diabetics. More and more people are diagnosed as having diabetes everyday, yet diabetics are still very under-represented ~ lets show the UK and the world who are are!

At our meetings you will be welcomed at the door by members of the committee. There is a display of leaflets relevant to aspects of diabetes available. Once everyone appears to have arrived, and taken a seat there will usually be a guest speaker at the meeting. As a group for those interested in diabetes, the guest speaker will normally have an interest in an aspect of diabetes ~ a Diabetes Specialist Nurse (DSN) for example, or a Dietitian. We also have guest speakers from the community on other interests. Towards the middle of the evening raffle tickets are sold to raise money for Diabetes UK and tea and coffee is provided, which signals the start of friendly discussion amongst members and gives everyone a chance to talk to one another. Grab a cup and ask what happened to the nurses strip tease party ~ that will get people interested!

The tease begins at 7:30PM. Visit the Postgraduate Centre (Basildon Hospital) on 7th December for the christmas party meeting!


We have had many speakers at the meetings, and I particulary found the opportunity to speak with a Dietician very useful as I had recently been told I was anaemic. See the following programme for a list of the guest speakers who have attended the meetings;

Programme of the past years meetings;
5th January: No Meeting
2nd February: Diabetes Specialist GP
2nd March: Insulin pumps
6th April: Essex Air Ambulance
4th May: Adopt a Project
1st June: London bombings
6th July: The NSF for diabetes
3rd August: Theatre land
7th September: Dietician
5th Ocotber: AGM, ladies of the tower
2nd November: Diabetes and Heart disease
7th December: Christmas party
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World Diabetes Day: 14th November [Nov. 6th, 2006|04:10 pm]
basildon and essex area diabetics

hermi_nomi
[mood |curiouscurious]

Okay folks, who knows anything about World Diabetes Day?
Me neither lol. But I was asked if I'd advertise the campaign in this community, and seeing as I knew nothing about it I thought raising awareness would be a great idea!

You may have noticed the banner on the user information page ~ 'Diabetes Care For Everyone' and a link to worlddiabetesday.org for more information.

For people who don't know about it, World Diabetes Day is on the 14th November. It was established by IDF (lnternational Diabetes Federation) and WHO (World Health Organisation) in 1991 with the aim of co-ordinating diabetes advocacy worldwide and has since become a global awareness campaign of the diabetes community.

The lnternational Diabetes Federation has chosen 2006 as the year of the disadvantaged and the vulnerable and the World Diabetes Day 2006 (November 14th) campaign aims to raise awareness of communities and groups in both developed and developing countries that experience difficulties in accessing optimal diabetes care.

To read more about this campaign, please click on the lj-cutCollapse )
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Queries about user info page? [Oct. 16th, 2006|01:01 pm]
basildon and essex area diabetics

hermi_nomi
Anyone have any comments, queries or constructive criticisms of the information provided on the user info page?

If so, talk about them here!
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Introductory post ~ about ourselves [Oct. 15th, 2006|01:41 pm]
basildon and essex area diabetics

hermi_nomi
[mood |cheerfulcheerful]

Hello folks! And welcome to the Basildon Area Diabetics Livejournal community for anyone who has experience of diabetes to enthuse, or grumble about their experiences (achieving a good HAb1c result, diabetic daughter in diabetic coma, diabetic brother accused of being drunk and disorderly, wifes first pregancy and finding she has gestantional diabetes, meeting another diabetic person, diabetic mum refusing to change cooking habits...)

Let me introduce myself ...

Type of diabetes: I have type 1 diabetes
Who has it: Me!
Date of diagnosis: Circa february 1991
Treatment: Novorapid and Lantus injections
Hates: HAb1c blood tests and bad hypoes
Likes: I love the new FreeStyle mini BM Kit
Trying/denying: In all the fifteen years I've had diabetes, I don't think I've ever really tried to manage the condition. I just done what was strictly neccessary ...I done my jabs and made sure I didn't hypo. I've never accepted that I have diabetes and that it's part of me for the rest of my life. I've never liked to think about it. But since starting on novorapid and lantus my blood sugars have lowered considerably and in recent years I've had to start taking control. I am trying.

Feel free to post an introductory comment here.
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